Thursday, August 13, 2009

Ok, this is just a quick post to say that I am going to be making a post tomorrow... I guess that sounds silly but if I don't make a statement and hold myself accountable, I will not make a post AGAIN!
Until tomorrow.......

Tuesday, June 23, 2009

New Post

OK, so it's been a few days since I made a post. This is due mainly to my obsession with Facebook social interaction games! I have been communicating with some old friends and making new ones on a few of these applications but have also been spending some time online (and in person since he is in the same room with me) with my youngest son, Matt. He is 13 and really enjoys these applications that use avatars to represent reality. I personally enjoy them because I am able to do things that I am not able to do in real life, like dancing, jumping, getting out to meet new people.
Anyway, I did not start this post to blab about the pros and cons of these sites, I really just wanted to note that I am going to get my Nuclear Stress Test done in the morning at 8:30 AM. In addition to all of the other issues I deal with on a daily basis, I have recently been experiencing chest pain and numbness and tingling(more than usual). I decided I had better have it checked out since I worked with a Cardiology Group for 5 years and I know that this kind of thing can go bad, fast!
I am also scheduled to go get a Mammogram and Bone Scan next week but I will post more on that later.
So, I will post my results in the next few days for all that are interested.

Thursday, June 18, 2009

Fibromyalgia in a nutshell


I have been asked to write a blog post to explain what Fibromyalgia is so that those of you who have not had any experience with it would have more information and I will attempt to do that now.

There is no "black and white" description of Fibromyalgia which is why for years many people, including Doctors, did not believe it actually existed. I will go so far as to say that there are folks who still don't believe it exist (my husband would fall into that category, in my opinion). Although every person that is diagnosed with Fibromyalgia is sure to have different symptoms and experiences, one thing is common to all; chronic, unexplained pain and fatigue (meaning we are tired and we hurt all the time with no medical reason). There are also these "tender points" that Dr's. check for pain and tenderness before diagnosis and I think you have to have like 11 out of the 18 known "tender points" to "qualify". The image at the top of this blog shows where the tender points are (shown by the dots).

I guess the reason why people did not believe that this was a real condition for so long is that there is no medical explanation for the symptoms, I went for every test known to man with no abnormal results before a final diagnosis was made. From a Doctors point of view, I can see how this would be quite perplexing, but to the patient, it is just plain frustrating!

I know people have heard about Chronic Fatigue Syndrome, Chroic Pain Syndrome, Depression, Sleep Disorders/Disturbances, Irritable Bowel Syndrome, and I could go on and on but I won't. Fibromyalgia is like having all of those things going on at the same time with no refief in sight.

I am going to include a link to WebMD because they have everything that is known about this condition on there and like I said before, not every person has every symptom. http://www.webmd.com/fibromyalgia/default.htm

Here is a youtube video that I share with all of the folks that don't want to believe this is real or that think people just make it up or think they know what I need to do to "fix" myself. http://www.youtube.com/watch?v=xyK2KjO3jok

I will do a separate post to give you my background, my story of how it all started for me, etc.

Wednesday, June 17, 2009

Oh Wow..

I know that it is late but I wanted to do a quick post since it has been a while. I had a change in my meds recently so I have been sleeping better at night (which is why I haven't posted anything lately), it also has me sleepy during the day though (which is why I am still up tonight).
OK, so in addition to the change in meds, I am looking for a job, trying to get my son a job (he just graduated H.S. last month), I am trying to get back to school and he is trying to decide what he is going to do with the rest of his life. Meanwhile, all of our bills just keep rolling in.....
Anyway, that is not what this post is about. I just wanted to note that I had started Estrogen replacement therapy about 10 days ago (btw, this is not the medication that is making me sleepy), I am not sure if it is making any difference as of yet, I think I feel a change but I guess it is still too soon to tell.
I have a sample package of some medication called "Savella" that I am supposed to start in a few days (didn't want to change everything at once!), this is supposed to be a medication specific to Fibromyalgia and I am truly hopeful that it is the miracle pill that it is hailed to be because, quite frankly, I need a miracle!!
OK, enough of that for now.
Later,
Lynn J

Monday, June 15, 2009

Good Night

I was really wanting to post something that was profound and deep tonight since I have not made any posts in the last couple of days but, I am so sleepy that I can hardly keep my eyes open to even do this.
I will most likely do a great post tomorrow when I can see and think!
Later,
Lynn

Thursday, June 11, 2009

Where do I start???

OK, let's get this party started!!! I have thought and thought about where to start and I have decided that I will just start right here!
As I mentioned before, I was diagnosed with Fibromyalgia 6 years ago, I don't know what caused it, I don't know what will fix it, I just know that I have been chosen to deal with it.
I know that we all must learn to "play the hand we're dealt", but I find myself wondering why some seem to always pull the crappy cards.
I make a huge effort to keep upbeat and be thankful for all that I do have going for me.. I have 4 healthy kids that are about as normal as they could be and the biggest joy of all my 41 years was when my grandkids were born. I know there are good things in my life but the catch is that I don't have the energy to enjoy them. I want to do so much, my mind is always going and I have amazing ideas, I just can't get my body to cooperate.
Instead of enjoying my life with my husband and my kids and my grandkids, I am watching from the outside and I don't like it!
While I am off from work for a few weeks, I have decided to make my rounds to the Dr.'s to see if there is any new and exciting medical news out there that might get me "back in the game".

My Fibro Blog

Hello Everyone! This is my first blogging experience and I am excited about getting started!
After visiting my brother's blog Merckistan , I decided to give it a whirl.
As noted in my profile, I was diagnosed with Fibromyalgia in 2003 after a Hysterectomy in 2002 failed to relieve symptoms. I have gotten along fairly well since, to the outside world anyway. I am sure that there are many folks that will read this and discover this information for the first time and be quite shocked to find out there is anything at all wrong with me!

One of the issues that I have is my messed up sleep schedule as shown by the fact that it is 2:30 AM!! I will be adding more post in the coming days and welcome comments from others, but for now, I am going to try to get some rest.